The
Parkinson Community Coalition is a non-profit organization functioning as the
grass roots voice of people with Parkinson’s (PWPs) and their carepartners. The
Parkinson’s disease (PD) community doesn’t have a single organization to follow. Instead, we have six major organizations. We call them the Big Six. Each
organization has its own mission and purpose.
The problem is that there is very little consolidation of material or
information, and some of their efforts are overlapping. As a result, PWPs and their
caregivers/carepartners don’t know who to listen to and sometimes receive
conflicting information. Even worse,
time and money are being wasted on duplicated services.
PCC is making
it easier for people with Parkinson’s and their loved ones to get the
information they need to not just cope with, but live well with this incurable, degenerative disease.
The Parkinson Community Coalition is
taking feedback directly from people in the Parkinson’s community and
presenting their concerns in a unified voice directly to the six major
Parkinson’s support organizations. PCC
is also sorting through the information currently available from the Big Six to
provide a library of the best resource material from each organization. PCC’s efforts will make it easier to receive
useful resource material, reduce the waste of overlapping efforts between
organizations, and let our voices be heard.
When are they doing it?
PCC has
already started making contacts with the right people in the Big Six, and have begun
development and roll out of their first survey to tell the Big Six what they are doing right, and what they need to do better.
How can people help?
The money raised through this campaign will be used to secure 501(c)3 status, develop a series of surveys designed to identify the frustrations of PWPs and their love ones, assess the data, and meet with the major
PD organizations. Money will also be used to organize the best available PD support material and make it easily accessible
to the people who need it.
Your donation of any size is appreciated, and will make a difference.
Whether you donate or not you can still help.
- Spread the word about the Parkinson Community Coalition.
- Share this Indiegogo donation page with your family, friends and support group members.
-
Tell people about our web site: www.MyParkinsonCommunity.org.
- Voice your opinion in our surveys.
THANK YOU FOR YOUR SUPPORT.