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Less Talk. More Action!

People living with Parkinson’s and their loved ones need safe, new, innovative treatments—now.

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Less Talk. More Action!

Less Talk. More Action!

Less Talk. More Action!

Less Talk. More Action!

Less Talk. More Action!

People living with Parkinson’s and their loved ones need safe, new, innovative treatments—now.

People living with Parkinson’s and their loved ones need safe, new, innovative treatments—now.

People living with Parkinson’s and their loved ones need safe, new, innovative treatments—now.

People living with Parkinson’s and their loved ones need safe, new, innovative treatments—now.

Parkinson’s Institute and Clinical Center
Parkinson’s Institute and Clinical Center
Parkinson’s Institute and Clinical Center
Parkinson’s Institute and Clinical Center
2 Campaigns |
Sunnyvale, United States
$556,524 USD 183 backers
222% of $250,000 Flexible Goal Flexible Goal
Highlights
Mountain Filled 2 Projects Mountain Filled 2 Projects

BREAKING NEWS: STRETCH (STRETCH!) GOAL OF $600,000!

You're making it happen. Just 2 weeks after launching our campaign on #GivingTuesday we reached our initial $250,000 funding goal. We announced a STRETCH GOAL of $500,000 and now 1 week later we celebrate our campaign which as of 12/23 has raised $541,747. Now that's what we call #LessTalkMoreAction! We cannot thank you enough. Now's the time. Please STRETCH with us to $600,000.

Less Talk. More Action! for World-Class Care and Cutting-Edge Parkinson's Disease Research.

It has been many years since the US Food and Drug Administration (FDA) approved an innovative new therapy for Parkinson’s disease. It’s frustrating. And frankly with the innovation and advances the world has seen in other disease areas it is downright unacceptable. We believe that there is a better way and new path forward.

We have asked ourselves some difficult questions. With a disease as complex as Parkinson’s, what is the best path forward in drug discovery, research, and development? Now is the time to approach Parkinson’s disease research in a new and different way—modeled after the successes realized in other diseases.

We are determined. We are optimistic. But we are also realistic and understand the challenges we face. We know that the development and approval of new treatments, and hopefully one day the discovery of a cure, will take time. So equally important, we are dedicated to providing world-class care and empowering both people living with Parkinson’s disease and their loved ones to live life to the fullest now—despite a Parkinson’s diagnosis.

Here's the great news. Enhancement and expansion of care and quality of life improvements today also play a critical role in our ability to fast-track new therapies for tomorrow.

With your support, we have the model to make it happen. We have spent the past 25+ years positioning the Parkinson's Institute and Clinical Center to take a directive leadership role and capitalize on these emerging opportunities.

Now's the Time. Our Next Era of Hope.

In February 2014, Carrolee Barlow, MD, PhD joined the Parkinson’s Institute as Chief Executive Officer (CEO). It was a truly historic moment as Dr. Barlow became only the second CEO in the Institute’s 25-year history. Founder and former CEO Dr. J. William Langston assumed a full-time Chief Scientific Officer role and gained the ability to commit additional time and energy to his Clinical Center practice.

It is a very hopeful and optimistic time given the critically important role that the Institute can continue to play in the development and discovery of new and better treatments for Parkinson’s. Our integration of clinical care, laboratory research, clinical research, and clinical trials is powerful and significant.

We are uniquely positioned to align the Institute, people living with Parkinson’s and their loved ones, and key stakeholders, including academia, industry, and regulatory agencies, to innovate and accelerate the pace at which we expand our understanding of Parkinson’s and bring promising and safe new therapies to people touched by this disease.

One Major Obstacle is Funding

While our best and brightest minds in Parkinson’s care and research have attracted numerous research grants, the Institute relies almost entirely on philanthropy to fund our unique and powerful model.

Government and foundation research grants only cover a modest portion of the expenses associated with our Institute’s remarkable science. Philanthropy drives the pace at which our researchers are able to pursue their work.

Caring for people with a disease as complex as Parkinson’s does not fit neatly into today’s healthcare economics. It takes much more than an assembly line approach and 15 minute consultation to provide appropriate and impactful care. Philanthropic support of the Institute ensures that no sacrifice is made and no corner is cut.

Challenges with the Traditional Care
and Research Model

In the traditional care and research model, academic institutions, health care providers, and pharmaceutical companies often do not work together. In academia, researchers who are focused on basic science laboratory research pursue new discoveries and the publication of these findings without an understanding of the real-life challenges experienced by people living with Parkinson’s and their families. All too often this can result in large amounts of funding being invested in research that cannot be effectively translated into tangible and immediate benefit. If there is not a safe or economical path to delivering the resulting therapy or treatment, a discovery is just a discovery that lives only in a publication within a journal. People personally touched by Parkinson’s disease are left questioning, “What does this mean for me?”

The traditional care and research model also breaks down for those providing care day-to-day for people living with Parkinson’s. Physicians and specialists do not have the opportunity to share their insights and knowledge with research teams who are pursuing groundbreaking discoveries. Subtle but often serious signs of whether a therapy or intervention may or may not be working, and quality of life considerations for the person living with Parkinson’s, rarely make their way beyond the clinic walls.

Lastly, the traditional care and research model fails at a critical juncture when industry does not conduct clinical trials because both the expense and risk associated with bringing a new product to market is simply too high. Pharmaceutical companies are in the greatest position to develop new therapies and treatments, but too many great innovations and discoveries are never tested because they do not make best economic sense.

Why Our Model Positions Us to
Make the Greatest Advances

Our highly specialized and integrated model has allowed us to make some of the greatest advances in Parkinson’s care and research. Not only do our doctors and specialists work hand-in-hand with our scientists, but they are also our researchers. At the Institute our neurologists are Movement Disorder Specialists, Parkinson’s disease experts, and they work collaboratively with scientific and clinical research teams within one holistic environment. Critical observations and insights and highly qualified data from our Clinical Center guide our laboratory and clinical researchers in their efforts. For 25+ years we have challenged the traditional care and research model.

How You Can Join Us and "Get Your Indiegogo On!"

  • Contribute today. Give graciously, generously, and to the fullest extent that you can. Go beyond "giving back". Give a gift from the heart. Invest in today, tomorrow, and hope.
  • Make some noise! Ask your family, friends, and co-workers to help spread the word about our Indiegogo crowdfunding campaign. Check out Indiegogo's easy to use share tools above.
  • Stay connected. Check back often as our campaign success unfolds and we talk more about the new initiatives at the Institute that you are helping to fund. Connect with the Parkinson's Institute and Clinical Center through our Website, Facebook, Twitter, YouTube, and/or subscribe to our eNews.

About the Parkinson's Institute and Clinical Center

We march to the beat of our own drum. 25+ years ago, Dr. J. William Langston and a dedicated group of Parkinson’s disease experts set out to create a better way to conduct research and provide care. We would go beyond your standard doctor-patient relationship. Patients would become partners in developing their care plans, improving their quality of life, and discovering new strategies to confront and manage their disease. Compassionate care would work hand in hand with cutting-edge research to seek answers, develop new therapies and treatments, and ultimately work toward a cure. Our result was the Parkinson’s Institute and Clinical Center based in Sunnyvale, California.

Along the way we have built something that is thoroughly unique. We are America's only independent non-profit organization combining world-class care, clinical research, laboratory research, and clinical trials for Parkinson's disease under one roof. Our Institute is a place where people living with Parkinson’s can both pursue their care and play an important role in research that will undoubtedly continue to change the landscape of Parkinson’s science and medicine.

By virtue of our design, we are uniquely equipped to provide the best care, accelerate promising science, and perhaps most important—integrate the two and everything in between. People living with Parkinson’s and their loved ones are at the center of all that we do. Learn more today.

Institute research focus areas include: biomarker discovery and clinical research; translational research on genetic forms of Parkinson’s; a world class LRRK2 research and drug discovery program (LRRK2 is the most common cause of familial or inherited Parkinson’s disease); stem cell modeling referred to as “Parkinson’s disease in a Petri dish”; and clinical trials and research on the non-motor or non-movement related and early features of Parkinson’s.

Parkinson's. We're In This Together.

On behalf of all people living with Parkinson’s disease and their loved ones—we thank you from the bottom of our hearts.

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Choose your Perk

Sport Our Tattoo

$10 USD
Proudly sport our Less Talk. More Action! temporary tattoo. You'll be the envy (and inspiration too!) of your family, friends, and co-workers.
1 claimed

Wear Our Wristband

$25 USD
Proudly wear our Less Talk. More Action! wristband. Be the envy (and inspiration too!) of your family, friends, and co-workers.
8 claimed

Show Off Our T-Shirt

$50 USD
Show off our Less Talk. More Action! t-shirt. Best dressed list calling your name.
8 claimed

Swag and Shout

$100 USD
Proudly wear our Less Talk. More Action! temporary tattoo, wristband, and t-shirt. Receive a Shout Out on Parkinson's Institute Facebook and Twitter.
3 claimed

Swag and Shout BONUS

$250 USD
Show off our Less Talk. More Action! temporary tattoo, wristband, and t-shirt. Receive a Shout Out on Parkinson's Institute Facebook and Twitter, and Photo Tribute on Facebook. What's a Photo Tribute on Facebook you ask? Dedicate your contribution in honor or memory of a loved one. Send us a photo and up to 50 words for a special Facebook Photo Tribute.
1 claimed

Signed Copy of Frozen Addicts

$500 USD
J. William Langston, MD, Founder of the Parkinson's Institute, will sign and send you a copy of his book The Case of the Frozen Addicts detailing the outbreak of suddenly “frozen” young men and women who exhibited advanced Parkinson’s-like symptoms after using a tainted batch of synthetic heroin. Dr. Langston identified the neurotoxin MPTP which destroys the same part of the brain as is damaged in Parkinson's. His discovery opened the door to an entirely new and powerful model for research.
1 claimed

Dr. Langston Lunch & Learn

$1,000 USD
Invitation only group visit to the Parkinson's Institute and Clinical Center for a lunch and learn with J. William Langston, MD, Founder, Chief Scientific Officer, and Movement Disorder Specialist. Learn more about the founding of the Parkinson's Institute and the history (and future!) of Parkinson's care and research.
2 claimed

Dr. Barlow Lunch & Learn

$5,000 USD
Invitation only group visit to the Parkinson's Institute and Clinical Center for a lunch and learn with Parkinson's Institute Chief Executive Officer (CEO) Carrolee Barlow, MD, PhD. Dr. Barlow joined the Parkinson's Institute in February 2014. It was a truly historic moment for the Institute as Dr. Barlow became only the second CEO in the Institute’s 25-year history. Learn more about Dr. Barlow's vision for the Institute and our new game-changing initiatives.
1 claimed

Lunch & Learn BONUS

$10,000 USD
$10,000+ Indiegogo campaign supporters will be invited for a 1:1 visit to the Parkinson's Institute and Clinical Center for an extra special lunch and learn with Carrolee Barlow, MD, PhD, Parkinson's Institute Chief Executive Officer, and J. William Langston, MD, Institute Founder, Chief Scientific Officer, and Movement Disorder Specialist. Learn more about the founding of the Parkinson's Institute, the latest innovations in care and research, and our vision for the future.
0 claimed

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