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Help Vasylyna treat erythropoetic porphyria

Help Vasylyna raise funds to treat rare genetic disorder.

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Help Vasylyna treat erythropoetic porphyria

Help Vasylyna treat erythropoetic porphyria

Help Vasylyna treat erythropoetic porphyria

Help Vasylyna treat erythropoetic porphyria

Help Vasylyna treat erythropoetic porphyria

Help Vasylyna raise funds to treat rare genetic disorder.

Help Vasylyna raise funds to treat rare genetic disorder.

Help Vasylyna raise funds to treat rare genetic disorder.

Help Vasylyna raise funds to treat rare genetic disorder.

Oksana Arkhypchuk
Oksana Arkhypchuk
Oksana Arkhypchuk
Oksana Arkhypchuk
1 Campaign |
Radekhiv, Ukraine
$2,085 USD 37 backers
41% of $5,000 Flexible Goal Flexible Goal
Choose your Perk

Heartfelt Thank you

$10 USD
3 claimed

Handmade Thank you Note

$25 USD
3 out of 50 of claimed

Handmade Organic Village Gift

$100 USD
2 out of 20 of claimed

Who is Vasylyna and why she needs your help

Vasylyna is a 21 year old girl from a small suburban town in the Western Ukraine. She recently graduated from high school and chose to take an online distance study in business.

One unfortunate day in March 2013 she suddently started feeling very bad, and in a moment collapsed in her house. When her worried family took her to the hospital, she was already in coma.. 

After many many hours of testing and analysis, local hospital in Lviv came up with a diagnose - erythropoetic porphyria. 

Erythropoietic protoporphyria (EPP) is a relatively mild form of porphyria, although very painful, which arises from a deficiency in the enzyme ferrochelatase, leading to abnormally high levels of protoporphyrin in the tissue.(Source: Wikipedia)

There is no cure for the desease but it can be managed with therapy and healthy blood cells transfusions. 

Unfortunately, no such treatment was available in Ukraine, and Vasylyna was transfered to a hospital in Warsaw, Poland. 

 

What Vasylyna needs

Currently Vasylyna is already up from coma. She started to go outside in her wheel chair, but still feels very weak. She can not eat on her own yet, lost a lot of weight and requires daily massages. If all goes well, she will be transfered to rehabilitation center. 

Vasylyna's treatment is extremely expensive. 

THE TOTAL COST IS 200.000 USD!!!!!

It's an incredible sum for a poor family in a small Ukrainian village.

Through hard work and a lot of fund raising, her parents managed to get already 35.000 USD. 

BUT IT IS NOT ENOUGH

Vasylyna and her family needs you. Help her recover from her sickness and get back to the normal life. EVERY SMALL HELP COUNTS!

 

Other Ways You Can Help

If you are not able to help with a donation, you can still lend us a hand by letting the world know. 

  • You can promote on social media
  • Tell your colleagues and friends at work
  • Spread the word around in your place of worship
  • And simply - pray for Vasylyna and her family
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