Vljudno vas vabiva, da obiscete Misino spletno stran http://www.helpmisawalk.com/ , kjer boste lahko spremljali, kako najina hcerka s fizioterapijami, ki ste jih velikodusno pomagali placati, napreduje in je vsak dan blizje svojemu velikemu cilju. Prav tako vas vabiva, da se nam 25. aprila 2015 pridruzite na dobrodelnem dogodku Teci z(a) Miso. Več podatkov o dogodku najdete na Misini spletni strani.

V kolikor zelite pomagati placati Misine fizioterapije, bova vase donacije zelo vesela na TRR, odprtem pri banki SKB: SI56 0310 2100 0552 286, SINDIKAT BENCINSKIH DELAVCEV, ŠMARTINSKA CESTA 45, 1000 LJUBLJANA. Ce na TRR nakazujete iz tujine, je SWIFT (BIC koda): SKBASI2X. Pomembno je, da ob nakazilu navedete, da gre za donacijo za Miso.

Maja in Ales, Misina starsa

Misa is a 2 ½ year old girl from Ljubljana, Slovenia who was born three months premature. Due to the lack of oxygen after birth she has suffered from a form of white-matter brain injury called periventricular leukomalacia. The injury is not severe and Misa is a smart girl who knows everything, talks all day long, sings songs, plays games and does everything else other children do. But still the injury is extensive enough for her movement not to happen spontaneously. We (with a lot of help from physiotherapists) had to teach her to crawl, sit and stand. Now we have to teach her to walk. Please read Misa's story.

For the first two years of her life Misa had two hours a week of physiotheraphy in the community health center (covered by insurance). When she was two her torso was still so hypotonic (low muscle tone) she was not able to get on all fours and crawl and was only able to sit if she supported herself with one hand. Her doctor told us she will not walk if she doesn't get more physiotherapy. We asked how much more and she answered as much as possible. We decided to give her 15 hours of physiotherapy a week. Even though we both work, we weren't able to pay them as one hour costs 40 euros ($54).

Ales's coworkers helped us out and collected almost 10,000 euros ($13,500). We put all the money into a union fund and from the fund the bills for Misa's physiotherapies were paid. Misa had 15, sometimes even 20 physiotherapies a week. As a result of this therapy, very soon she was strong enough to get on all fours and crawl. She has started to sit unsupported. She has begun to get up and can now stand if she can hold on to something.  She also walks if you hold her by the shoulders. Physiotherapies worked a miracle. Misa worked so hard to achieve these steps in her progress. She is now so close to walking. If she were a "normal" child she would have been walking within a month or two. Due to her health restrictions, it can take up to six months (maybe even nine) before she will walk on her own. The money in the fund is running low and we ask for your help.

We would like Misa to continue with 15 pyhsiotherapies a week until she can walk independently.  To be able to pay for all the physiotherapies we need atleast 7,500 euros (a little more than $10,000). If Misa's crowdfunding reaches a lot of people and more money is raised to help her cause, we hope to find ourselves lucky that Misa walks independently before money runs out.  If that happens, all the remaining money will be given to the parents of little Kornelia. Kornelia is also 2 ½ years old. She also was born premature, spent the first month of her life in intensive care with Misa and is now fighting the same battle.

We kindly ask you to donate if you can afford it. If you can't, we only ask you to share Misa's story so it will spread to as much people as possible. 

Thank you very much for your help.

Maja and Ales, Misa's parents

Misa je dve leti in pol stara deklica, ki se je rodila tri mesece prezgodaj. Zaradi pomanjkanja kisika je utrpela poskodbo mozganov, imenovano periventikularna levkomalacija. Poskodba ni huda in Misa je pametna deklica, ki vse ve, od zore do mraka govori, poje pesmice, se igra in dela, kar delajo drugi otroci, se pa zaradi te poskodbe pri Misi gibanje ni razvilo spontano. S pomocjo fizioterapevtov sva morala Miso nauciti kobacanja, sedenja in stanja. Zdaj jo morava nauciti tudi hoje. Prosim, preberite Misino zgodbo.

Prvi dve leti svojega zivljenja je imela Misa dve uri fizioterapij na teden v zdravstvenem domu. Te terapije je placevala zavarovalnica. Ko je bila stara dve leti, je bil njen trup se vedno tako hipoton (nizka misicna napetost), da se ni zmogla dvigniti na vse stiri in se kobacati, sedela pa je lahko samo, ce se je necesa drzala. Njena zdravnica nama je rekla, da ne bo hodila, ce ne bo dobila vec fizioterapij. Ko sva jo vprasala, koliko je to vec, nama je odvrnila kolikor veliko je mogoce. Odlocila sva se, da bo imela Misa 15 fizioterapij na teden. Ceprav oba delava, jih nisva mogla placati, kajti ura fizioterapije stane 40 evrov.

Alesevi sodelavci so za Miso zbrali skoraj 10.000 evrov. Ta denar sva dala v sklad sindikata in ta sklad je placeval racune za Misine fizioterapije. Misa je imela 15, vcasih celo 20 fizioterapij na teden. Zelo hitro se je zmogla dvigniti na vse stiri in se kobacati. Zacela je sedeti brez opore. Zacela je vstajati in zdaj stoji, ce se lahko cesa drzi. Celo hodi, ce jo drzimo za ramena. Z intenzivnimi fizioterapijami je res mocno napredovala. Zdaj je ze blizu samostojne hoje. Ce bi bila "obicajen" otrok, bi v mesecu ali dveh shodila. Ker pa ima tezave, njena pot do samostojne hoje lahko traja od sest do devet mesecev. Denarja v skladu zmanjkuje, zato prosiva za pomoc.

Zeliva, da Misa nadaljuje s 15-imi fizioterapijami na teden, dokler ne bo samostojno hodila. Ce jih zeliva placati, potrebujeva najmanj 7.500 evrov. Ce bo Misina akcija dosegla veliko ljudi in bo zbrano veliko vec denarja, upava, da bo Misa hodila, preden bo sredstev zmanjkalo. Ce se bo to zgodilo, bova preostali denar dala starsem deklice Kornelie. Tudi Kornelia ima dve leti in pol, tudi ona se je rodila prezgodaj, prvi mesec dni zivljenja je skupaj z Miso prezivela v inkubatorju in zdaj bije isto bitko.

Prijazno vas prosiva, da donirate, ce si to lahko privoscite. Ce ne morete darovati, vas prijazno prosiva, da delite Misino zgodbo.

Ce ste iz Slovenije in vam je denar lazje nakazati na transakcijski racun, bomo vasega nakazila veseli na TRR, odprtem pri banki SKB: SI56 0310 2100 0552 286, SINDIKAT BENCINSKIH DELAVCEV, ŠMARTINSKA CESTA 45, 1000 LJUBLJANA. To je racun Jakcevega sklada, ki ga je ustanovil Sindikat bencinskih delavcev, katerega clan je Ales. Jakcev sklad je zadnje pol leta placeval Misine fizioterapije iz sredstev, ki so jih za Miso zbrali Alesevi sodelavci. Pomembno je, da ob nakazilu navedete, da gre za donacijo za Miso. Ce na TRR nakazujete iz tujine, je SWIFT (BIC koda): SKBASI2X.

Najlepsa hvala za vaso pomoc. In poiscite Miso (Misa Prelog) na Facebooku, da boste lahko spremljali, kako z zbranimi sredstvi telovadi in napreduje.

Maja in Ales, Misina starsa