Short Summary
The Sickle Cell Disease Association of America (SCDAA) supports people living with Sickle Cell in many ways:
- Providing information for people living with and family and friends of people living with Sickle Cell Disease
- Advocacy for people living with Sickle Cell Disease
- Promotes basic and translational research and supports initiatives to increase community participation in clinical research
What We Need & What You Get
Instead of giving us funds for the pool party, we ask that you donate to this fundraiser instead. No amount is too small!! The pool party will provide:
- Classic BBQ Food and snacks
- Beverages- Alcoholic and Non-alcoholic.
- We are proud to have Lobos Tequila donating their product to our cause.
- Additional sponsorship by AMP Community and The Good Brother Project!
- The music stylings of 2HO
- Pool fun all day long :)
The Facts
Sickle cell disease is an inherited blood disorder that affects red blood cells. Sometimes these red blood cells become sickle-shaped (crescent-shaped) and have difficulty passing through small blood vessels. When sickle-shaped cells block small blood vessels, less blood can reach that part of the body. Tissue that does not receive a normal blood flow eventually becomes damaged. This is what causes the complications of sickle cell disease. There is currently no universal cure for sickle cell disease.
Sickle cell conditions are inherited from parents in much the same way as blood type, hair color and texture, eye color, and other physical traits. The types of hemoglobin a person makes in the red blood cells depend upon what hemoglobin genes the person inherits from his or her parents. Like most genes, hemoglobin genes are inherited in two sets, one from each parent.
SCD occurs among about 1 out of every 365 Black or African-American births. SCD occurs among about 1 out of every 16,300 Hispanic-American births. While SCD is not the cause of death, the complications that come with it - damage to most organs including the spleen, kidneys, eyes, and liver- lead to the passing of many people living with SCD.
As many of you know, KC Morse has Sickle Cell Disease. KC has worked to advocate for those who suffer from this disease but do not have the resources she has been given from birth. KC has been fortunate enough to have an incredible support system in her parents, her twin brother Mac Morse (whose idea it was to have this year's party be a fundraiser for SCD), and you, all her friends. It is because of that support that she has been able to work hard pursue her dreams despite the obstacles Sickle Cell puts in her path. KC has participated in clinical trials and is deeply grateful for the information and aid the SCDAA has provided.
The Impact
By donating to our fundraiser you will be giving funds to a foundation that helps millions of people living with Sickle Cell Disease around the world. Your donation will help with the advancement of research going towards finding a cure for Sickle Cell Disease.
Thank you for your consideration!
