Dear friends,
We are here to raise funds for
our little girl Amaliya who was recently diagnosed with SMA1(Spinal Muscular Athrophy). Amaliya is only 1.4 years old and she has very little time to get a treatment with Zolgensma which is a gene therapy medicine.
This horrible disease takes away her muscles, by weakening them one by one...
Even those responsible for breathing, swallowing and heartbeat...
Together, we are trying to collect funds for a gene therapy.
We are begging you to help us with making this baby win her health back.
The medicine costs over $2,000,000. Parents have already raised over $200,000
The drug is called Zolgensma
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